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I will start this post with an apology that I don't have before and after pictures. If I get ambitious, I might post one later. Today I gave Steven his first haircut since before he started chemo. Well, once I took him to a place and they trimmed up the ends, but it doesn't really count because his blonde tipped curls have stayed in tact. His hair is getting supe long and when the curls aren't tight, he has been sporting quite the wild head of hair. Plus my mom has been threatening to cut his hair whenever she sees him, so I figured it was time and he reluctantly agreed. I picked the boys up from the bus stop with every intention of taking them to Cookie Cutters, but they were tired and hungry and begged me to just cut their hair at home. I only know one haircut and that is short. So while Steven watched a Nova episode, I cut off his curls. Addie couldn't take her eyes off him and every few minutes said, "I just can't get used to how you look, Steven....

Life has been pretty crazy over here lately...I will have to fill you in when things have settled down over here. I'm posting today a thing I wrote for Steven's star of the week spotlight. Maybe nothing is new, but I thought I'd type it up anyway. Steven said the class really like embarassing stories, but he wanted to make sure I didn't say anything too embarassing. Just thought I'd clarify why I picked the stories I did. Steven was born in Columbus, Ohio and lived there until he was seven, so he is a Buckeye. He taught himself to read when he was four, and hasn't stopped reading since. He often gets caught up in a book and it is hard to get him to do whatever else he needs to do--like eat or play with a friend who has come over to play. He loves to learn about history and science and then share the facts he learns with us. When he was four he pointed to the sun and said, "Look, Mom, the giant ball of burning gas!" He loves to learn about...

So here are some long promised pictures of Steven's leg. You can see that he was in the island spirit when he picked the fabric for the leg--we are officially counting down the days to Hawaii! Here is Steven posing for a picture at the Sand Dune arch at Arches National park during spring break. Have I posted a picture with him wearing this shirt yet? It reads: "New and Improved: Now Cancer Free" (Oh, and don't worry--he is faithfully wearing the shark tooth necklace that Make-A-Wish gave him. He doesn't go far without it!) With Grandma Jill at Bluff fort. My mom and grandma were troopers as we explored Bluff. Here is another picture from our photo shoot a few weeks ago--just a little shout out to this beautiful spring season!

Steven hasn't been to PT in a few weeks so when we showed up today, his therapists were floored with his progress. He hasn't touched his crutches for a few weeks now and gets stronger every day. They are talking about having him come in monthly rather than weekly, so life will be a little more simple that way. Of course, there are still many questions, this procedure is so rare and unique to each person that getting just the right alignment of his prosthetic is a tricky thing. I have some catching up to do, like promised pictures of the leg, etc, but I am on my ipad tonight and too lazy for that. I did want to share a conversation I had with Andrew as I was tucking him into bed. He decided to come along to physical therapy today (he loves the basketball hoop and gym at Shriners and is always hoping I will let him play the ipad). As we arrived, Steven's therapists were finishing up with a girl who was trying to walk with the aide of a walker and almost a full body b...

Okay, that is it, I am officially fed up with something about this new blogger format. When I get a minute I am changing back to the old style in hopes of having some better luck. I just spent 30 minutes typing up an emotional report of some of the cancer mental anguish we've been experiencing around here lately, and somehow it all got lost. So for tonight, I'm done pouring out my heart. I hope some computing unit out there in cyberspace enjoys that! To be honest, I don't know that I will ever retype it, but a recap is that Steven had a hard time at a genetic counseling appointment last week--such a hard thing. Maybe foolish of me to even go to that appointment. In the end, the fear of living with the knowledge of having a very rare but scary gene mutaiton (Li Fraumeni Syndrome) was just too much and he decided firmly against the idea of testing. The chances of him having the mutation are so low--espceially when you look at my extremely large family with only a few ...